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If you’ve been diagnosed with Parkinson's, it can be easy to feel that you’re facing the issue alone. However, there are other people out there just waiting to help and encourage you. These folks will provide a crucial support structure to help you better navigate the emotional complexities that Parkinson's brings with it. Below, learn more about building an effective support system.

Start With Family & Friends

Asking for help is hard for most people; this is true whether you have Parkinson's disease or not. Start by reaching out to trusted family members and friends who can make time to listen and help.

Parkinson's diseaseMeet with loved ones who you’re comfortable opening up to, those who won't become uncomfortable with sharing feelings, venting frustrations, and discussing fears. Try to schedule regular meetups with these individuals, even if it's just a daily phone call, a weekly walk through the park, or a monthly lunch or dinner.

Talk to Your Doctors

Your doctors want to help you be as healthy as possible, both physically and mentally. Be sure to make them an integral part of your care and support team. If you're scared, tell them. If you have questions, ask them. If you need reassurance, request it. Your doctors can also refer you to helping professionals who have specialized experience working with folks who have Parkinson's and other chronic conditions. Take advantage of these resources. A therapist or social worker has the necessary distance and objectivity to provide practical advice and life skills.

Join a Support Group

Sometimes only others with a shared experience can truly understand what you’re going through. This is where a support group comes in. Doctors and mental health professionals likely know of some local support groups where other people with Parkinson's disease or similar issues meet regularly to discuss challenges, share joys, and build friendships. A support group also offers a safe, nonjudgmental space to share hard feelings and be heard.

 

 

If you are a Connecticut resident with Parkinson's disease, support groups are available through Connecticut Advocates for Parkinson's. Located in Windsor, CT, they offer advocacy and support services for individuals with Parkinson's and their loved ones. Become a member by calling (860) 266-6040 or visiting their website.

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