A Parkinson’s diagnosis can be tough on the whole family. This is especially true when it comes to children, who may be frightened by the news that a loved one is afflicted by an illness. Talking with kids about the diagnosis and what it entails is necessary, but may be a hard conversation to have. Use the following advice to help your children understand. 

A Guide to Explaining Parkinson’s to Young Ones

Use Clear & Concise Language

Parkinson’s disease is a complex condition. Involving unfamiliar terminology like basal ganglia, subthalamic nucleus, and dopamine, even adults may have trouble. When speaking with your kids or grandkids, limit confusion by using plain language. Steer clear of medical jargon and instead use clear and approachable words. Describe symptoms in ordinary terms and explain how the illness will impact your life on a daily basis. That way your child will be able to understand the impact of Parkinson’s without getting lost in the details.

Talk to Your Kids One at a Time

Each child will react differently to the news of the diagnosis. Older children may take the news in stride, while younger ones might need more clarification and reassurance. Speaking to your children one at a time will allow you to provide the attention they need to feel safe and secure. Talk to your child in a private and relaxed environment, ensuring you have enough time to devote to the matter. Once everyone is informed, you can come together as a family and go over the impact of the diagnosis.

Encourage Your Child to Ask Questions

Children may have many questions for you about the illness and how it will affect you and them. Be prepared for these questions and answer them to the best of your ability. Common queries include whether the disease is contagious, whether it’s hereditary, and whether it’s fatal. Keep in mind that children may not know how to phrase these questions delicately, so practice patience. While it’s normal for children to feel sad at the news, if your child is taking it especially hard, seek help from a counselor or therapist.

Connecticut Advocates For Parkinson's understands the impact this disease can have on families. That’s why they’re dedicated to providing essential resources to people with Parkinson’s and their loved ones. They offer support groups that provide invaluable information, guidance, and bonding. They also provide information on treatment advancements, including clinical trials using new and experimental treatments. For more information on support groups, please visit the website. Call (860) 266-6040 to speak with a kind and caring representative about accessing resources.