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Although Parkinson’s disease is a degenerative condition, many are surprised to learn that it can take 20 years or longer for several symptoms to develop, especially among those who are diagnosed early on. Given this broad and unpredictable timeline, it can be difficult for individuals to know how they should plan for the effects of the condition. Fortunately, by working with your medical team, family, and considering the following tips, you’ll manage the challenges you might experience later in life.

What Steps Should You Take in the Early Stages of Parkinson’s?

Estate Planning

Estate planning refers to what you want to happen to your assets after your passing. There are a few different ways to approach this. Wills, for example, are legal documents that determine how your assets will be divided and distributed among loved ones. It can also help determine who will care for any minor children if you’re not married. A trust works similarly to a will, but can go into effect at any point based on the terms of the document. For example, it may allow you or a designated trustee to distribute assets to select beneficiaries before your death.

Durable Power of Attorney

parkinson'sA durable power of attorney is a legal document that names a specific individual who will make decisions for you in the event you’re unable to do so — such as if you’re hospitalized and unable to communicate.

Depending on the stipulations of your agreement, the power of attorney will explain who will carry out decisions related to property and healthcare. You may designate these responsibilities to two different parties.

A durable power of attorney will only remain in effect while you’re incapacitated and requires the authorized agent to follow any instructions you may have specified.

Advance Directive

An advance directive details your specific wishes for end-of-life care. Some decisions made within an advance directive include life support preferences and power of attorney for healthcare matters, if not previously determined. You may also include a do-not-resuscitate (DNR) order, which will inform medical providers of your wishes. While these may not be pleasant thoughts to dwell on, being prepared will give you the peace of mind that your requests will be respected and your loved ones won’t have to make difficult decisions. 

 

Making legal and financial decisions for the future is just one of the many elements to think about after being diagnosed with Parkinson’s disease. That’s why Connecticut Advocates for Parkinson’s, a nonprofit organization, is dedicated to providing in-depth support to help you navigate all aspects of the disease. Whether you’re learning about the condition for the first time or are interested in clinical trials for Parkinson’s, this non-profit agency will connect you and your loved ones to beneficial resources that will improve your quality of life. For more details on these services, visit this Hartford County, CT, group online or call a volunteer at (860) 266-6040.  

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