Receiving a Parkinson’s diagnosis can result in a range of conflicting emotions. You may be especially concerned about disclosing your diagnosis to friends and family, which leads many people to withhold the information until they feel the time is right. No matter which option you choose, the following information can help you make the best decision about your unique situation.

Talking About Your Illness With Family

If you choose not to disclose, be prepared for speculation as your Parkinson’s symptoms become more evident. Also, if you have kids, they’re likely to ask questions or even expect the worst if you don’t let them know about your illness. Some people find the stress of keeping a secret this big to be highly stressful. This can be an unnecessary burden when you’re already dealing with emotions related to your diagnosis.

Conversely, your family is bound to be distressed by your diagnosis. This distress can manifest itself in a number of ways and could even affect your well-being if it causes stress. If you do choose to disclose, it’s best to sit your loved ones down and talk about what the diagnosis means to you and what they can do to help. In many cases, friends and family react in loving and positive ways, which can be extremely reassuring during a troubling time.

How to Deal With Employers

The topic of Parkinson’s disease and your employer is even more sensitive. This is because your illness might eventually impact your ability to do your job, or in the very least you may require accommodations from your employer. The Americans with Disabilities Act offers protection in this case, although you may still feel hesitant about disclosing.

On the downside, disclosing your illness could lead to your employer viewing you differently, or may even jeopardize your position (although this is against policy in most cases). For most people, the right time to talk to your employer is when you feel you need assistance at your place of work. In most cases, your employer should be able to reasonably accommodate your needs.  

Connecticut Advocates For Parkinson's knows that it’s never easy receiving a diagnosis for a serious illness. That’s why this non-profit group pledges to support people afflicted with Parkinson’s at every stage, from the initial diagnosis to their progress through the disease. Their volunteers provide outreach in many different areas, such as educational programs, wellness initiatives, and even information on clinical trials. If you’d like more information on how to receive help or even become a member, feel free to call (860) 266-6040. You can also visit them online to use the convenient contact form.