Lessons I’ve Learned Observing Those Fighting Parkinson’s 

My Wife Michelle was diagnosed with Parkinson’s at the age of 40, eleven and a half years ago. My kids were thirteen and eight. I was devastated. I thought my world, as I knew it, was coming to an end.  It hasn’t. Michelle has refused to let it. With rigorous exercise and hope, Michelle has done very well managing her symptoms.  I know others battling Parkinson’s aren’t as lucky.  She is my Hero. I don’t say those words lightly. I’m not saying them for effect. I truly mean them. I know I would not be as courageous as she is. Since her diagnosis, I’ve learned a lot about myself.  I hope I have become a better human being. 

In this journey, I’ve learned a lot about humankind.  I’ve seen many people battle this disease. Some of them have become my friends, for which I am truly grateful.  I’ve seen marriages broken apart, spouses have abandoned them after the diagnosis, not being able to accept their new reality. Many of the people I know with Parkinson’s have not allowed themselves to be defined by the disease. They have adapted and have continued to live rich, rewarding lives. Sometimes, I’ve wondered how they do it. It seems they have been able to let go of their fear of the future to begin living in the present. I think we could all take a lesson from this. Most of us are so worried about saving for retirement or getting our next promotion; we forget to live in the present. Life is available only in the present moment.  I think we all need to remember that.  We should all try to live each day wisely, earnestly, and compassionately. If you are the loved one of someone fighting Parkinson’s or another chronic disease, please remember to treasure every moment with them, as the gift it truly is. James Kavanaugh wrote, “To share our {struggles} with the ones we love is perhaps as great a joy as we can know – unless it is to share our laughter.” 

I know my story is not unique.  Each of us will be challenged in some way, be it health, finances, or relationships.       

I hope that we can all live our lives, no matter what the burden, with open hearts, love, grace, and gratitude. 

If you are battling Parkinson’s, please remain hopeful.  I know a cure is just over the horizon. 

If you have Parkinson’s and CAP can help you in any way this, please email or give me a call.  

Special Note:  I would like to thank Ray Figlewski and members of the Branford Road Race committee for their very generous donation to CAP.   

Warm Regards,

Karl C. Hespeler
Chairman 
860-490-0251
Karl@Parkinsonsct.org