Share:

Hearing the words, “You have Parkinson’s disease” from the physician can completely change your life. It’s a complex condition that produces many challenges, and it can be difficult to know what to expect after a diagnosis. The volunteers at Connecticut Advocates for Parkinson’s in Branford, Southbury, Glastonbury, and all of Connecticut, understand that it can be a confusing and intimidating time for you and your family and want to share what to expect following the diagnosis. 

What to Expect Initially

The diagnosis may feel like a devastating blow, but it doesn’t mean that you’re going to be consumed by the side effects any time soon. Parkinson’s is a progressive neurological disorder, so it will get worse over time; however, many people don’t experience the furthest stage for 20 years or more. You’ve likely already experienced some of the initial symptoms, such as difficulty with speech, slight tremor, and muscle stiffness, and may have even become accustomed to them. In many cases, they aren’t debilitating enough to keep you from driving, working, or exercising. However, know that these are possibilities. In the meantime, educate yourself and seek a support system if you have difficulty coping.

How Do I Prepare for the Future?

parkinsons-disease-connecticut-advocates-for-parkinsonsThere’s no cure for Parkinson’s disease, but there are ways to prepare for disease management. Side effects can take years to fully set in, so you may not need much more than regular visits to a specialist initially. You should stay in touch with your doctor and consider telling friends, family, and coworkers when you’re comfortable. It’s also a good idea to begin looking into occupational therapy and other resources to reduce side effects in the future. Diet and exercise can slow disease progression, so discuss possible lifestyle changes with the doctor. Collectively, this will ensure you’re prepared for whatever comes well in advance.

If you've been newly diagnosed or have been living with Parkinson’s disease, turn to Connecticut Advocates for Parkinson’s. Volunteers are committed to helping people with the condition live fulfilling lives and are happy to offer a variety of resources, including news and updates on clinical trials. Call (860) 266-6040 or visit their website and Facebook page to learn more about their organization. 

tracking