Marlborough, Connecticut

Connecticut Advocates for Parkinson's

Connecticut Advocates for Parkinson's

(860) 266-6040
Connecticut Advocates for Parkinson's, Charities & Donations, Family and Kids, Marlborough, Connecticut

Defined by doctors as a disease that affects the way you move, Parkinson’s disease, which is linked to decreased dopamine production, affects as many as 1 million Americans. Connecticut Advocates for Parkinson’s (CAP) is a non-profit, 501-c3 registered charity that offers positive support for people with Parkinson’s, as well as their families and friends.

In conjunction with several sister charity organizations located throughout the state, Connecticut Advocates for Parkinson’s offers outreach initiatives, patient group collaboration, wellness and educational opportunities, and clinical trial transportation and updates. Whether you choose to participate through monetary donations, by attending one of our educational seminars or Parkinson’s support groups,  or by taking the time to participate in a clinical trial, Connecticut Advocates for Parkinson's welcomes you as a part of the CAP family, and looks forward to helping those with the disease to fight back in a meaningful and successful way.

To inquire about upcoming events, resources or volunteer opportunities, call (860) 266-6040 today. For more comprehensive information, visit them online.


Connecticut Advocates for Parkinson's Membership

Announcements & Events from Connecticut Advocates for Parkinson's
3 Balance Exercises for People With Parkinson’s, Marlborough, Connecticut
One primary side effect of Parkinson’s disease is imbalance. This can significantly impair mobility, which can in turn negatively impact your quality of life. more
How Should You Plan for Parkinson’s Disease?, Marlborough, Connecticut
Although Parkinson’s disease is a degenerative condition, many are surprised to learn that it can take 20 years or longer for several symptoms to develop, especially among more
What Is the Hoehn & Yahr Scale?, Marlborough, Connecticut
Parkinson’s is a complex disease that has different effects on health as it progresses. The Hoehn and Yahr scale is a tool many doctors use to track developing symptoms and offer more
How Smart Devices Help People With Parkinson's, Marlborough, Connecticut
Daily life with Parkinson's can be challenging. Fortunately, modern technology offers many solutions that improve the day-to-day experience of individuals with the more
4 Potential Risk Factors for Parkinson's, Marlborough, Connecticut
As Parkinson’s impacts over 10 million people globally, researchers are constantly trying to learn more about the disease to promote early intervention and develop new treatments. more
Every year, roughly 60,000 Americans are diagnosed with Parkinson’s disease. It’s important to identify early warning signs of this neurodegenerative condition so you can more
Happy New Year! My advocacy travels have slowed considerably during the year-end and January, but I am pleased to have been able to recently attend the hilarious – and touching – more
As you have probably heard and read about, exercise is the best thing one can do to combat this disease.  Parkinson’s is a neurological disease that cause many, many symptoms more
Unsung Heroes I had the opportunity to speak to the CAP’s Glastonbury Support on Thursday, January 17th.  I spoke about the many initiatives CAP is undertaking.  I also more
Although Parkinson’s disease is estimated to impact nearly a half-million Americans, there is unfortunately no cure yet. However, new research from Rutgers University more
People with Parkinson’s disease now have a new treatment option. On December 21, 2018, the U.S. Food and Drug Administration approved Inbrija™, a levodopa powder delivered by more
Winter weather poses unique challenges for individuals living with Parkinson’s disease. You may find that cold temperatures increase stiffness, while slippery walkways might deter more
As the new year is upon us, it is always a time to reflect, set goals, be disappointed on the goals you didn’t accomplish last year, and it can sometimes can be depressing. more
Setting Goals I hope everyone has enjoyed the Holidays. It is hard to believe we are now in 2019, the last millennium far behind us.   For many, including myself, it is more
While there are a variety of treatments that can delay and manage the symptoms of Parkinson's, there is no known cure. In conjunction with other therapies, supplements are one of more
December – a chance to unwind and spend time with family!! With a few trips and Advocacy Items!! Here are some of the highlights: On November 26th through 28th, ,  I more
Will the Holiday Season Drain You? Not this Year! Candy, Sugar, Cookies, Cocktails, Parties, Less Sleep, Less Exercise, Shopping, No routine, Visiting, traveling and on and on we more
Happy Holidays – A time to be grateful As we enter into another Holiday season, I think we all reflect on life and its true meaning. As I’ve gotten older, I seem to have more more
The mobility issues that Parkinson’s disease causes create challenges in many aspects of your life, even at home. Luckily, there are ways that you can modify your home to make more
The human central nervous system (CNS) is made up of the spinal cord and brain. When a patient has Parkinson’s disease, CNS abnormalities lead to symptoms such more
We all forget things from time to time. For people with Parkinson’s disease, cognitive impairment and memory problems affect executive function, or their ability more
Fatigue is one of the first major symptoms to emerge in individuals with Parkinson’s disease. It occurs for a variety of reasons, including lowered mobility and muscle fatigue, more
When one gets diagnosed with any disease, it is life changing. The manner in which we react can change your world and everyone around you.   Here are some stories that I more
THE IMPORTANCE OF YOUR VOTE The first thing a person with Parkinson’s will do on November 6th, Election Day,  is the same thing they do most every morning.   They more
MIT / CAP Partnership – Our Chance to Change the Direction of Parkinson’s Research Connecticut Advocates for Parkinson’s (CAP) is embarking on an ambitious partnership with The more
The human body was made to move. Even if you maintain a balanced diet, you won’t achieve optimum health unless you get gentle physical activity daily. Virtually more
For those living with Parkinson’s, a balanced diet can help boost overall well-being. However, certain effects of the disease can make it difficult to eat and digest food properly. more
For people with Parkinson’s disease, day-to-day tasks can present unique challenges. With a few modifications, however, activities like cooking, getting ready, and writing notes more
While the causes of Parkinson’s are still unknown, some genetic and environmental factors may play a role in its development. In addition to studying the impact of heavy more
September was a month of very busy travel.  Here are some of the highlights: On September 22nd and 23rd,  I attended the “6th Annual Shaping the Management of Parkinson’ more
Why Do Bad Things Happen to Good People? I asked this question so many times in my life, and I still don’t know the answer.  I remember the first time I asked that question more
Living with Parkinson’s disease—or watching a loved one struggle with the condition—is challenging. The symptoms and side effects can make it hard to complete even simple more
A Holistic Approach to Managing Parkinson’s Symptoms As I have mentioned many times in the CAP Newsletter, my wife Michelle was diagnosed with Parkinson’s at the age of 40, almost more
The demands of traveling can be challenging for people with debilitating conditions, such as Parkinson’s disease. Yet, with some careful planning, it becomes possible to enjoy new more
Parkinson’s disease is a complex neurodegenerative condition that can be nearly unnoticeable in the early stages. As it progresses, the side effects become debilitating, which is more
Receiving a Parkinson’s diagnosis can result in a range of conflicting emotions. You may be especially concerned about disclosing your diagnosis to friends and family, which leads more
So much great info to share, and so little space!! First – what I’m up to in the coming weeks: always trying to advocate on behalf of PWP’s!! On September 13th and 14th, I’m more
Attitude – Get Yours Right! Since the day I was diagnosed, my attitude keeps me sane.  It keeps me moving forward, it keeps me focused, and it keeps me healthy.  This more
Please, Volunteer! As the days begin to shorten and Summer soon turns to Fall, CAP begins the process of planning for next year. Our Board and Committee members begin discussing more
The global battle to finding a cure for Parkinson’s disease is ongoing, and helping those living with the condition enjoy happy, fulfilling lives is a unified effort. It’s important more
The life-altering changes that come with Parkinson’s disease can take an extreme toll on your mental health after you’re diagnosed. It can be both intimidating and crushing, more
Parkinson’s disease can have debilitating side effects, but it’s essential to stay active. Exercise, even if it’s just adding an extra walk to your day, plays a positive more
Hearing the words, “You have Parkinson’s disease” from the physician can completely change your life. It’s a complex condition that produces many challenges, and it can be difficult more
Lessons I’ve Learned Observing Those Fighting Parkinson’s  My Wife Michelle was diagnosed with Parkinson’s at the age of 40, eleven and a half years ago. My kids were more
Everyone Has a Story As I wrote my personal story last month, I did not realize how much impact it would have on those who read it.  It was written from my heart, and that is more
This month, I have a number of “Advocacy Items” I would like to share.  Please know that CAP does our best to keep up with the latest happenings, “Hot” items, and science, more
Parkinson’s disease continues to be one of the most complex and debilitating medical conditions. People living with it face a variety of challenges every day, which is why the more
Living with Parkinson’s disease can be emotionally taxing. Even with support from family and loved ones, you can feel isolated. Depression is a common side effect, and the more
Parkinson’s disease introduces many challenges, ranging from difficulty with speech to mobility. As a friend, it can be heartbreaking to watch, but there are many ways you can help. more
Parkinson’s disease is a complex, incurable condition that presents many challenges as it progresses. It affects everyone differently, but the five definitive stages provide insight more
From the desk of Steve DeWitte, co-founder, CAP MIT Research I’m very excited to travel to Cambridge with Karl Hespeler and Kelly Kearney on July 10 for a follow-up meeting more
Good Days & Bad Days The past five days have been five of the most memorable and cherished days of my life.  Before that, I had four or five of the worst days of my life.& more
As spring turns into summer, I wanted to take the time to reflect on several exciting initiative and events that CAP has been involved in recently. Our Board and Committee members more
The side effects associated with Parkinson’s disease make it one of the most difficult conditions to manage. It introduces many challenges, and people living with the disease are at more
Parkinson’s disease is complex condition with many challenges. Whether you’re a professional caregiver or family member, you should know how to handle disease management with more
The effect that Parkinson’s disease has on motor function can make it difficult for people living with the condition to stay active. Exercise is essential for healthy living, more
"Live Well, Do Tell” Initiative  This is a program, created by Acorda Therapeutics with input from a multi-disciplinary steering committee of Parkinson’s disease leaders and more
Life with PD is a challenge every day with everything you do. That is a strong statement. Let me explain. Rolling over in bed, brushing your teeth, shaving your legs, blow more
Several weeks ago, CAP had a meeting with several renowned scientists at MIT to discuss the Parkinson’s research they are conducting.  Board members Kelly Kearney and Steve more
People living with Parkinson’s disease face several sleep-related side effects. Fatigue and other consequences directly impact quality of life, which is why you need to more
Parkinson’s disease affects the body in a number of ways that translate into the workplace. When you’re first diagnosed, it can be difficult to know how and when to speak with more
The debilitating side effects of Parkinson’s disease significantly impact mobility and make it dangerous for people to walk. As a family member or friend, it’s important to more
Parkinson’s disease is one of the most prominent and well-known neurodegenerative conditions. However, despite extensive research, it remains one of the most mysterious. more
Life of a Patient Advocate April 2 – Part of “Welcome Committee” that greeted and congratulated Brett Parker for his accomplishment of completing 7 Marathons/7 days/ 7 Continents.& more
  Power, Persevere and Take a Deep Breath As April ends and May begins, a sense of accomplishment, appreciation and wonder go through my mind.  April was Parkinson’s more
Parkinson’s Awareness month is now over.  It was a month filled with enthusiasm and excitement. From my perspective, every April outshines the last.  All month long, more
The symptoms and stresses of Parkinson’s disease can make it difficult to maintain a positive mood. This weighs heavily on your mental health, which is why it’s important to combat more
People with Parkinson’s disease deal with a number of challenges each day. The side effects impact every aspect of their lives, which may include difficulty eating. more
Parkinson’s disease takes both an emotional and physical toll, and watching a friend deal with the side effects is difficult. The volunteers at Connecticut Advocates for more
If you haven’t heard by now, the whole month of April is dedicated to Parkinson’s awareness month, when an already energetic Parkinson’s community kicks it into high gear in the more
Lots of items going on in our efforts to advocate on behalf of PWP’s.  I recently traveled to Washington, DC as part of the 2018 Parkinson’s Public Policy Forum, held March more
During the past decade of living with this challenging disease, as a fitness professional and a patient, I have often been asked various questions about exercise and PD.  When more
Please consider joining fellow Parkinson’s Advocates, families, and friends for a very special Presentation being held at the Capitol Legislative Office Building (LOB ~ Room1B) on more
Enduring the symptoms of Parkinson’s disease can be a challenge to those afflicted.  They affect mobility, comfort, and speech. While there’s no cure for this disease, more
Parkinson’s disease is unique to every patient, and people living with it can have a difficult time finding a treatment regimen to help them best manage side effects. Research for a more
People with Parkinson’s disease deal with a number of debilitating side effects, according to the volunteers at Connecticut Advocates for Parkinson’s in Windsor, CT. This can more
Parkinson’s disease is a complex condition caused by many different factors. In the search for a cure, researchers have identified a number of traits that can contribute to disease more
This month, we feature two CAP Members, Sarah Diaz and Peter Northrop. Peter and Sarah have important events coming up in April, which is Parkinson’s Awareness Month. more
Parkinson’s Awareness Month, which serves to bring attention to the disease and the needs of the patient community, is fast approaching.   April was chosen to commemorate more
Each stage of Parkinson’s disease is difficult to cope with. As it progresses, it can put an immense amount of stress on you. The volunteers at Connecticut Advocates for more
Parkinson’s can be an isolating disease, which is why it’s essential to spend time with a family member living with it. The volunteers at Connecticut Advocates for Parkinson’s more
Parkinson’s disease is one of the most complex neurodegenerative conditions. With no existing cure, research is targeting a number of unique possibilities for a solution. One of the more
Parkinson’s disease is one of the most studied medical conditions. It’s both complex and debilitating, which is why ongoing research for a cure is a priority in the medical more
Karen is a volunteer for the adaptive ski program STRIDE at Ski Sundown in New Hartford. She says, “doing something where I’m focused on helping someone else is very more
On Thursday, January 25th, CAP’s Glastonbury Support group hosted Dr. David Matuskey, M.D and Mark F. Dias from Yale University School of Medicine to speak about their novel, more
Parkinson’s disease is one of the most puzzling and complex neurodegenerative conditions. Different avenues of research focus on a variety of insights while searching for a more
Parkinson’s disease is one of the most debilitating and complex medical conditions. However, despite its prevalence, many people find it difficult to understand, which is why more
Parkinson’s disease is a debilitating condition, and alongside the challenges of treatment and recovery, patients often receive extensive bills. This creates a major burden for more
Although Parkinson’s disease has no cure, there are many lifestyle factors you can change to help manage it. Diet and nutrition play a crucial role in all aspects of bodily function, more
Joe, who is 59-years old, was diagnosed with Parkinson’s Disease 6 years ago.  Joe is the CAP State Delegation Leader. He is married and the father of two sons, and lives in more
As the New Year begins, I find the desire to set new goals and try to change my mind set on certain issues.  I always try to start with a positive attitude. In this regard, I more
Parkinson’s disease ranks among the most common late-life neurodegenerative diseases, and also affects younger people, as well (About 10%-20% of those diagnosed with Parkinson’ more
Parkinson’s is one of the leading neurodegenerative diseases. With no cure, treatment options and management vary from patient to patient. Researchers continue to look for more
Parkinson’s disease is an extremely complex condition. Because there is no cure, there are constant clinical trials being conducted. For patients that are unable to manage more
If your loved one is suffering from a serious medical condition like Parkinson’s disease, it can be emotionally difficult to accept it and reshape aspects of more
In 2006, Ray Figlewski was diagnosed with Parkinson’s disease.  The dancing that he had loved so much up to that point had begun to elude him – “losing my coordination” he says more
CAP’s Gala on Saturday, November 18th at the Aqua Turf Club in Plantsville, CT was a rousing success. Four hundred and thirty people enjoyed a fun-filled evening complete with a more
Nothing replaces an effective health care team, especially when managing conditions like Parkinson’s disease. Patients require an extensive and varied amount of care, but more
Parkinson’s disease is one of the most heavily researched health conditions. It has no cure and leaves patients immobile and unable to care for themselves as it more
Living with Parkinson’s disease affects every aspect of your life and drastically limits your abilities. While there is no cure for this movement disorder, there are treatment more
Parkinson’s disease is one of the most prevalent neurological disorders, and watching a loved one endure its progression is heartbreaking. Early treatment is imperative, which more
In September, I attended (and was part of Planning Committee) a four day program in Grand Rapids, Michigan.   I serve as an advisor to the Cure Parkinson’s Trust UK, who more
CAP’s inaugural newsletter in October was very well received.  Thank you all for your positive feedback. We are doing the very best we can to provide local support to those more
Parkinson’s disease is a debilitating and emotionally painful condition that affects many people. This progressive nervous system disorder is a constant topic of medical more
Parkinson’s disease is one of the most common neurodegenerative disorders and affects millions of people around the world. It develops gradually, often without warning signs, and more
Watching a loved one suffer from the progression of Parkinson’s disease is a challenging experience, and with no clear cure, the challenge gets greater with time. Risk factors and more
Advocacy Efforts September 8 – 12, 2017  I was in Cleveland on September 8th and attended the “Shaking with Laughter” Program presented by Karen & Mark Jaffe, to benefit more
In January, I was honored and humbled to be voted Chairman of the Board for Connecticut Advocates for Parkinson’s (CAP). I am replacing Steven DeWitte, CAP’s founder. Steve is a more