Marlborough, Connecticut

Connecticut Advocates for Parkinson's

Connecticut Advocates for Parkinson's

(860) 266-6040
Connecticut Advocates for Parkinson's, Charities & Donations, Family and Kids, Marlborough, Connecticut

Defined by doctors as a disease that affects the way you move, Parkinson’s disease, which is linked to decreased dopamine production, affects as many as 1 million Americans. Connecticut Advocates for Parkinson’s (CAP) is a non-profit, 501-c3 registered charity that offers positive support for people with Parkinson’s, as well as their families and friends.

In conjunction with several sister charity organizations located throughout the state, Connecticut Advocates for Parkinson’s offers outreach initiatives, patient group collaboration, wellness and educational opportunities, and clinical trial transportation and updates. Whether you choose to participate through monetary donations, by attending one of our educational seminars or Parkinson’s support groups,  or by taking the time to participate in a clinical trial, Connecticut Advocates for Parkinson's welcomes you as a part of the CAP family, and looks forward to helping those with the disease to fight back in a meaningful and successful way.

To inquire about upcoming events, resources or volunteer opportunities, call (860) 266-6040 today. For more comprehensive information, visit them online.

 

Connecticut Advocates for Parkinson's Membership

Announcements & Events from Connecticut Advocates for Parkinson's
How Can Yoga Benefit People With Parkinson’s Disease?, Marlborough, Connecticut
Medical professionals have long known about the benefits of regular exercise for people with Parkinson’s disease (PD), and researchers are still discovering how s...read more
Welcome Dr. Neha Prakash, Marlborough, Connecticut
Dr. Neha Prakash Movement Disorders Neurologist; Assistant Professor of Neurology, University of Connecticut School of Medicine Dr. Prakash is a graduate of G.S.V.M. School of Medi...read more
Spotlight on PD in Connecticut: Historic Meeting of Various Support Groups, Marlborough, Connecticut
Dr. Duarte Machado, co-Medical Director of the Chase Family Movement Disorders Center at Hartford Healthcare, called it “historic”.  “It” was a meeting, facilitated by Stev...read more
Spotlight on PD in Connecticut: Chase Family Movement Disorders Center , Marlborough, Connecticut
LIKE-MINDED. LIKE HEARTED. It’s a Sunday afternoon in late October, and Dr. Toni de Marcaida, Medical Director of the Chase Family Movement Disorders Center (CFMDC) of Hartford Heal...read more
Spotlight on PD in Connecticut: Hospital for Special Care (HFSC), Marlborough, Connecticut
On a blustery, cold Friday in November, the team at Hospital for Special Care (HFSC) in New Britain takes time from their busy schedules to sit down and discuss, with obvious pride a...read more
I share below Larry’s heartfelt reflection on living with Parkinson’s.  Larry is a great friend, one that I would never have met if we did not have this common diagnosis.  ...read more
Happy Holidays – A Big Thank You to Our Volunteers.  As another year draws to a close, everyone will be in the midst of preparation for this Holiday season. This is very specia...read more
Parkinson’s disease is a common but complex neurological condition that’s often misunderstood. Knowing the facts behind this condition will help ensure that loved ones with Park...read more
Living with Parkinson’s disease can be a challenging experience for the individual with the condition, but it can take a toll on their loved ones as well. As the loved one ...read more
The field of Parkinson’s research expands every day. As scientists continue their research and learn more about the disease, they help create more treatment options and move us close...read more
Note: This is the first in a series highlighting what’s happening around Connecticut in the area of Parkinson’s research, treatment, innovation, and collaboration.  We will high...read more
The Power of Community On October 5th, CAP had its 4th bi-annual Gala event at the Aqua Turf in Southington, CT with live music, dinner, and a silent auction. The monies raised from...read more
Exercise is great, but we NEED a cure for this disease. I see this disease affecting my friends every day.  We are progressing and only have some control over our destination.&n...read more
There are roughly one million people living with Parkinson’s disease in the United States. Researchers have begun to explore how yoga practice can help these individuals maintain mob...read more
If you’ve recently been diagnosed with Parkinson's disease, you’re likely unsure how to proceed. Processing the diagnosis and learning to accept what it means can be difficult, but w...read more
Alone. Pills. Sleeplessness. Stiff. Shaky. Worried. Anxious. Tired. Poor gait, poor balance, poor memory, no confidence. Tired. Anxious. Worried. Shaky. Stiff. Sleeples...read more
On September 9 and 10, fellow Parkinson’s advocates and CAP members Sarah Diaz, Joe Kelley, and Doug DuMond joined me in Washington, D.C. as part of the “Day on the Hill” for us.&nbs...read more
Thank You, Volunteers It has been a whirlwind couple of months at CAP. On September 15th, CAP had a grand opening of The PD Center of Connecticut. This facility was a long time in t...read more
As science searches for a cure for Parkinson’s, researchers continue to make promising breakthroughs. One of the most recent developments made by scientists at MIT is ...read more
Parkinson’s disease is a progressive illness that causes a gradual worsening of movement and mobility. Because the effects of the disease are so profound, doctors and researcher...read more
I have Parkinson’s Disease.  I have a great life, and I am fortunate. I have lived with PD for almost 13 years. Once in a while, I break down and cry and say to myself, “what is...read more
On August 21st and 22nd, I attended “Grand Challenges in Parkinson’s Disease: Understanding the Genetic Risk” at the Van Andel Research Institute in Grand Rapids, MI.  Grand Cha...read more
In July, CAP opened the Parkinson’s Center of Connecticut, a 3000 square foot facility located in East Hartford, Connecticut. This facility was a long time in the making, from concep...read more
In their ongoing effort to expand Parkinson’s care, the Connecticut Advocates for Parkinson’s (CAP) will be hosting their fourth biennial gala. Excess funds will go toward growing th...read more
On August 24, those with Parkinson’s disease (PD) and their loved ones are invited to attend The Victory Summit® in Philadelphia. Hosted by the Davis Phinney Foundatio...read more
Exercise is important for everyone, but it’s especially important for people with Parkinson’s. Regular exercise can improve symptoms or even slow their progression. While proper fitn...read more
With one of our CAP Board Members recently getting DBS, I wanted to find out for myself what this is all about, and how it can potentially help PWP’s.  I was also interested in ...read more
Specialty Pharmacies, Grand Challenges in Parkinson’s, Victory Summit Philadelphia, Day on the Hill Washington D.C. Regarding specialty/online pharmacies, as a patient, first and fo...read more
One of my treasured PD friends recently walked into the new PD Center and her reaction was one I will never forget.  She was in awe of how warm and welcoming it felt and her fac...read more
It is hard to believe it is August already. I hope everyone is enjoying the summer. Our Board, Committee Members, and all our volunteers have been extremely busy this year trying to ...read more
One of the most recent and innovative advancements in medicine is a special type of implant intended to improve symptoms associated with neurological disorders, such as Parkinso...read more
Although Parkinson’s affects an estimated 1 million Americans, this disease is still not widely understood. The condition impacts each individual differently, but all experience sign...read more
An estimated 60,000 Americans are diagnosed with Parkinson’s every year, with one million expected to be living with the disease by 2020. To address the growing need for knowledge an...read more
To fight Parkinson’s disease and find a cure, there must be contributions from researchers, medical experts, and countless other passionate individuals. One such group is The McGover...read more
Earlier this month I traveled to Stanford University to participate in the Pacific Udall Center’s External Advisory Committee meeting. The Pacific Udall Center “is a collaborati...read more
The summer has gotten off to a slow start. I don’t remember a spring/summer that has been so rainy and cold. As we enter into July, I’m hoping for clear blue skies and warm weather.&...read more
It’s estimated that nearly 10 million Americans live with Parkinson’s disease, a progressive neurological disorder that can lead to debilitating physical and cognitive complications....read more
One of the founding members of MIT’s McGovern Institute for Brain Research, Professor Ann Graybiel is undertaking pioneering Parkinson’s research to take steps toward a cure. As...read more
Characterized by the progressive deterioration of nerve cells in the brain, Parkinson’s disease is associated with many limitations, including slow movement, loss of coordination, tr...read more
Cure Now: PD's mission is to find a cure for Parkinson's, and MIT’s Professor Robert S. Langer is one of the greatest contributors to this mission. In addition to his achie...read more
According to the American Parkinson’s Disease Association, an estimated 1 million Americans are currently living with Parkinson’s disease, while more than 10 million people suffer fr...read more
Despite there being no cure yet for Parkinson’s, our understanding of it grows with every clinical study. The role genetics play in causing the disease has been a focus of resea...read more
Creating a treatment regimen with your medical provider is key to managing the symptoms of Parkinson’s disease. In addition to taking the appropriate medications, incorporating a gro...read more
Every year, approximately 60,000 Americans are diagnosed with Parkinson’s disease. While this neurodegenerative disorder results in tremors, stiffness, slow movements and diffic...read more
Parkinson’s disease can affect the visual system in a variety of ways, and its effects tend to be focused on one’s vision and eyelids. Impaired sight leads to a number of indire...read more
If you’ve been diagnosed with Parkinson’s, medical marijuana may relieve symptoms and improve your quality of life. Adult Connecticut residents with the condition may qualify fo...read more
Getting plenty of exercise is essential to reduce the effects of Parkinson's disease on movement and muscle control. If you’re starting a physical activity plan, consider tai chi. Wi...read more
Levodopa is an essential drug for Parkinson’s disease management. While it doesn’t cure the condition, it effectively reduces many of its major symptoms. The right time to ...read more
If you or someone you love has Parkinson’s disease, head to the Fourth Annual Southern New England Parkinson’s Symposium & Expo this June. At this all-day event, participant...read more
After being diagnosed with Parkinson’s disease, your healthcare team will establish a treatment plan that includes a variety of medications. These prescriptions will reduce the ...read more
There is currently no cure for Parkinson's disease, but symptoms can be managed with the right tools. Many of those techniques are coming from emerging technologies in the healthcare...read more
“Determination allows mere mortals to soar to unimaginable, new heights” – (attribution unknown) – this quote speaks to the need for determination as an ingredient in the “effort to ...read more
In December 2018, two decades of research starting in the Langer Lab at MIT resulted in FDA approval of Inbrija, the first approved inhaled levodopa powder for Parkinson’s patients. ...read more
In early April, I traveled to Chandler, AZ to participate in the annual meeting of the Parkinson’s Study Group, “a non-profit group of physicians and other health care providers from...read more
My new mantra that I say daily in my head.  Adapt and Overcome.  Each day, each year, each year life throws us challenges and obstacles.  They come from nowhere; they...read more
Another Parkinson’s Awareness month is now over. As always, it was a month filled with enthusiasm and excitement. From my perspective, every April seems to outshine the last. All mon...read more
Inflammation is one of the many ways the immune system protects the body. Sometimes, however, it can harm your health. Acute inflammation occurs in reaction to injuries, bacteri...read more
In addition to working with medical providers to develop a comprehensive treatment plan, exercise is key to managing Parkinson’s disease. If you’re looking for a way to boost yo...read more
Recent research has found a link between Parkinson’s disease and attention-deficit hyperactivity disorder (ADHD). Those with ADHD are reportedly at a higher risk of developing Parkin...read more
Parkinson’s disease affects thousands of Americans, with about 50,000 people diagnosed each year. This degenerative neurological disease can affect various aspects of a person’s life...read more
Technology I recently traveled to the U of R Udall Center Update, headed by Dr. Ray Dorsey, who is a part of the Center for Health and Technology (CHeT).  This group seeks to ...read more
Parkinson’s Disease - I never really knew much about it - why would I? Life was full of so much happiness, love, and brightness. It was my first year of middle school; seventh grade...read more
April is Parkinson’s Awareness Month Spring is in the air! Very soon we’ll be seeing those daffodils in their full bloom – signifying the onset of spring, and the warmth that accom...read more
Because Parkinson's affects movement and often produces tremors, carrying out some of the essential tasks of daily living can become a challenge. One of the day-to-day activities tha...read more
A Parkinson’s diagnosis can be tough on the whole family. This is especially true when it comes to children, who may be frightened by the news that a loved one is afflicted by an ill...read more
Loss of motor skills is one of the most debilitating side effects of Parkinson’s disease and can lead to significant mobility issues. Physical therapy and exercise has been shown to ...read more
Free Admission! A fundraising event to raise money for scholarships for people with Parkinson's to participate in the Beat PD Today exercise program. Join us for an exciting and f...read more
My Advocacy travels are keeping me busy, but mostly in the northeast, as of late. Pictured is the McGovern Brain Institute at MIT, where I attended an information session with fel...read more
April is Parkinson’s Awareness Month During April, many individuals and groups will be participating in Parkinson’s Awareness Month. April was chosen to commemorate the birth of D...read more
If your loved one has been diagnosed with Parkinson’s, you may notice a decline in their ability to control movements as the disease progresses. This condition attacks the central ne...read more
There are many ways for those with Parkinson’s disease to exercise safely and productively. In fact, adopting a regular fitness routine may help individuals improve their s...read more
One primary side effect of Parkinson’s disease is imbalance. This can significantly impair mobility, which can in turn negatively impact your quality of life. Thankful...read more
Although Parkinson’s disease is a degenerative condition, many are surprised to learn that it can take 20 years or longer for several symptoms to develop, especially among those...read more
Parkinson’s is a complex disease that has different effects on health as it progresses. The Hoehn and Yahr scale is a tool many doctors use to track developing symptoms and offer tre...read more
Daily life with Parkinson's can be challenging. Fortunately, modern technology offers many solutions that improve the day-to-day experience of individuals with the conditio...read more
As Parkinson’s impacts over 10 million people globally, researchers are constantly trying to learn more about the disease to promote early intervention and develop new treatments. Al...read more
Every year, roughly 60,000 Americans are diagnosed with Parkinson’s disease. It’s important to identify early warning signs of this neurodegenerative condition so you can s...read more
Happy New Year! My advocacy travels have slowed considerably during the year-end and January, but I am pleased to have been able to recently attend the hilarious – and touching – o...read more
As you have probably heard and read about, exercise is the best thing one can do to combat this disease.  Parkinson’s is a neurological disease that cause many, many symptoms w...read more
Unsung Heroes I had the opportunity to speak to the CAP’s Glastonbury Support on Thursday, January 17th.  I spoke about the many initiatives CAP is undertaking.  I also l...read more
Although Parkinson’s disease is estimated to impact nearly a half-million Americans, there is unfortunately no cure yet. However, new research from Rutgers University sugge...read more
People with Parkinson’s disease now have a new treatment option. On December 21, 2018, the U.S. Food and Drug Administration approved Inbrija™, a levodopa powder delivered by in...read more
Winter weather poses unique challenges for individuals living with Parkinson’s disease. You may find that cold temperatures increase stiffness, while slippery walkways might deter yo...read more
As the new year is upon us, it is always a time to reflect, set goals, be disappointed on the goals you didn’t accomplish last year, and it can sometimes can be depressing.  A...read more
Setting Goals I hope everyone has enjoyed the Holidays. It is hard to believe we are now in 2019, the last millennium far behind us.   For many, including myself, it is a...read more
While there are a variety of treatments that can delay and manage the symptoms of Parkinson's, there is no known cure. In conjunction with other therapies, supplements are one of the...read more
December – a chance to unwind and spend time with family!! With a few trips and Advocacy Items!! Here are some of the highlights: On November 26th through 28th, ,  I participa...read more
Will the Holiday Season Drain You? Not this Year! Candy, Sugar, Cookies, Cocktails, Parties, Less Sleep, Less Exercise, Shopping, No routine, Visiting, traveling and on and on we go...read more
Happy Holidays – A time to be grateful As we enter into another Holiday season, I think we all reflect on life and its true meaning. As I’ve gotten older, I seem to have more quest...read more
The mobility issues that Parkinson’s disease causes create challenges in many aspects of your life, even at home. Luckily, there are ways that you can modify your home to make i...read more
The human central nervous system (CNS) is made up of the spinal cord and brain. When a patient has Parkinson’s disease, CNS abnormalities lead to symptoms such as...read more
We all forget things from time to time. For people with Parkinson’s disease, cognitive impairment and memory problems affect executive function, or their ability ...read more
Fatigue is one of the first major symptoms to emerge in individuals with Parkinson’s disease. It occurs for a variety of reasons, including lowered mobility and muscle fatigue, sleep...read more
When one gets diagnosed with any disease, it is life changing. The manner in which we react can change your world and everyone around you.   Here are some stories that I would...read more
THE IMPORTANCE OF YOUR VOTE The first thing a person with Parkinson’s will do on November 6th, Election Day,  is the same thing they do most every morning.   They beg...read more
MIT / CAP Partnership – Our Chance to Change the Direction of Parkinson’s Research Connecticut Advocates for Parkinson’s (CAP) is embarking on an ambitious partnership with The Mas...read more
The human body was made to move. Even if you maintain a balanced diet, you won’t achieve optimum health unless you get gentle physical activity daily. Virtually everyo...read more
For those living with Parkinson’s, a balanced diet can help boost overall well-being. However, certain effects of the disease can make it difficult to eat and digest food properly. T...read more
For people with Parkinson’s disease, day-to-day tasks can present unique challenges. With a few modifications, however, activities like cooking, getting ready, and writing notes beco...read more
While the causes of Parkinson’s are still unknown, some genetic and environmental factors may play a role in its development. In addition to studying the impact of heavy me...read more
September was a month of very busy travel.  Here are some of the highlights: On September 22nd and 23rd,  I attended the “6th Annual Shaping the Management of Parkinson’...read more
Why Do Bad Things Happen to Good People? I asked this question so many times in my life, and I still don’t know the answer.  I remember the first time I asked that question wa...read more
Living with Parkinson’s disease—or watching a loved one struggle with the condition—is challenging. The symptoms and side effects can make it hard to complete even simple t...read more
A Holistic Approach to Managing Parkinson’s Symptoms As I have mentioned many times in the CAP Newsletter, my wife Michelle was diagnosed with Parkinson’s at the age of 40, almost ...read more
The demands of traveling can be challenging for people with debilitating conditions, such as Parkinson’s disease. Yet, with some careful planning, it becomes possible to enjoy new lo...read more
Parkinson’s disease is a complex neurodegenerative condition that can be nearly unnoticeable in the early stages. As it progresses, the side effects become debilitating, which is why...read more
Receiving a Parkinson’s diagnosis can result in a range of conflicting emotions. You may be especially concerned about disclosing your diagnosis to friends and family, which leads ma...read more
So much great info to share, and so little space!! First – what I’m up to in the coming weeks: always trying to advocate on behalf of PWP’s!! On September 13th and 14th, I’m partic...read more
Attitude – Get Yours Right! Since the day I was diagnosed, my attitude keeps me sane.  It keeps me moving forward, it keeps me focused, and it keeps me healthy.  This does...read more
Please, Volunteer! As the days begin to shorten and Summer soon turns to Fall, CAP begins the process of planning for next year. Our Board and Committee members begin discussing ho...read more
The global battle to finding a cure for Parkinson’s disease is ongoing, and helping those living with the condition enjoy happy, fulfilling lives is a unified effort. It’s important ...read more
The life-altering changes that come with Parkinson’s disease can take an extreme toll on your mental health after you’re diagnosed. It can be both intimidating and crushing, whi...read more
Parkinson’s disease can have debilitating side effects, but it’s essential to stay active. Exercise, even if it’s just adding an extra walk to your day, plays a positive ro...read more
Hearing the words, “You have Parkinson’s disease” from the physician can completely change your life. It’s a complex condition that produces many challenges, and it can be difficult ...read more
Lessons I’ve Learned Observing Those Fighting Parkinson’s  My Wife Michelle was diagnosed with Parkinson’s at the age of 40, eleven and a half years ago. My kids were thi...read more
Everyone Has a Story As I wrote my personal story last month, I did not realize how much impact it would have on those who read it.  It was written from my heart, and that is w...read more
This month, I have a number of “Advocacy Items” I would like to share.  Please know that CAP does our best to keep up with the latest happenings, “Hot” items, and science, but...read more
Parkinson’s disease continues to be one of the most complex and debilitating medical conditions. People living with it face a variety of challenges every day, which is why the volunt...read more
Living with Parkinson’s disease can be emotionally taxing. Even with support from family and loved ones, you can feel isolated. Depression is a common side effect, and the volunteers...read more
Parkinson’s disease introduces many challenges, ranging from difficulty with speech to mobility. As a friend, it can be heartbreaking to watch, but there are many ways you can help. ...read more
Parkinson’s disease is a complex, incurable condition that presents many challenges as it progresses. It affects everyone differently, but the five definitive stages provide insight ...read more
From the desk of Steve DeWitte, co-founder, CAP MIT Research I’m very excited to travel to Cambridge with Karl Hespeler and Kelly Kearney on July 10 for a follow-up meeting at...read more
Good Days & Bad Days The past five days have been five of the most memorable and cherished days of my life.  Before that, I had four or five of the worst days of my life.&n...read more
As spring turns into summer, I wanted to take the time to reflect on several exciting initiative and events that CAP has been involved in recently. Our Board and Committee members ha...read more
The side effects associated with Parkinson’s disease make it one of the most difficult conditions to manage. It introduces many challenges, and people living with the disease are at ...read more
Parkinson’s disease is complex condition with many challenges. Whether you’re a professional caregiver or family member, you should know how to handle disease management with fi...read more
The effect that Parkinson’s disease has on motor function can make it difficult for people living with the condition to stay active. Exercise is essential for healthy living, especia...read more
"Live Well, Do Tell” Initiative  This is a program, created by Acorda Therapeutics with input from a multi-disciplinary steering committee of Parkinson’s disease leaders and ex...read more
Life with PD is a challenge every day with everything you do. That is a strong statement. Let me explain. Rolling over in bed, brushing your teeth, shaving your legs, blow dry...read more
Several weeks ago, CAP had a meeting with several renowned scientists at MIT to discuss the Parkinson’s research they are conducting.  Board members Kelly Kearney and Steve DeWi...read more
People living with Parkinson’s disease face several sleep-related side effects. Fatigue and other consequences directly impact quality of life, which is why you need to fin...read more
Parkinson’s disease affects the body in a number of ways that translate into the workplace. When you’re first diagnosed, it can be difficult to know how and when to speak with cowork...read more
The debilitating side effects of Parkinson’s disease significantly impact mobility and make it dangerous for people to walk. As a family member or friend, it’s important to crea...read more
Parkinson’s disease is one of the most prominent and well-known neurodegenerative conditions. However, despite extensive research, it remains one of the most mysterious. It...read more
Life of a Patient Advocate April 2 – Part of “Welcome Committee” that greeted and congratulated Brett Parker for his accomplishment of completing 7 Marathons/7 days/ 7 Continents.&n...read more
  Power, Persevere and Take a Deep Breath As April ends and May begins, a sense of accomplishment, appreciation and wonder go through my mind.  April was Parkinson’s Awar...read more
Parkinson’s Awareness month is now over.  It was a month filled with enthusiasm and excitement. From my perspective, every April outshines the last.  All month long, patien...read more
The symptoms and stresses of Parkinson’s disease can make it difficult to maintain a positive mood. This weighs heavily on your mental health, which is why it’s important to combat t...read more
People with Parkinson’s disease deal with a number of challenges each day. The side effects impact every aspect of their lives, which may include difficulty eating.   Becau...read more
Parkinson’s disease takes both an emotional and physical toll, and watching a friend deal with the side effects is difficult. The volunteers at Connecticut Advocates for Parkins...read more
If you haven’t heard by now, the whole month of April is dedicated to Parkinson’s awareness month, when an already energetic Parkinson’s community kicks it into high gear in the spir...read more
Lots of items going on in our efforts to advocate on behalf of PWP’s.  I recently traveled to Washington, DC as part of the 2018 Parkinson’s Public Policy Forum, held March 20...read more
During the past decade of living with this challenging disease, as a fitness professional and a patient, I have often been asked various questions about exercise and PD.  When ...read more
Please consider joining fellow Parkinson’s Advocates, families, and friends for a very special Presentation being held at the Capitol Legislative Office Building (LOB ~ Room1B) on Ap...read more
Enduring the symptoms of Parkinson’s disease can be a challenge to those afflicted.  They affect mobility, comfort, and speech. While there’s no cure for this disease,...read more
Parkinson’s disease is unique to every patient, and people living with it can have a difficult time finding a treatment regimen to help them best manage side effects. Research for a ...read more
People with Parkinson’s disease deal with a number of debilitating side effects, according to the volunteers at Connecticut Advocates for Parkinson’s in Windsor, CT. This can drastic...read more
Parkinson’s disease is a complex condition caused by many different factors. In the search for a cure, researchers have identified a number of traits that can contribute to disease d...read more
This month, we feature two CAP Members, Sarah Diaz and Peter Northrop. Peter and Sarah have important events coming up in April, which is Parkinson’s Awareness Month.  Saturday...read more
Parkinson’s Awareness Month, which serves to bring attention to the disease and the needs of the patient community, is fast approaching.   April was chosen to commemorate t...read more
Each stage of Parkinson’s disease is difficult to cope with. As it progresses, it can put an immense amount of stress on you. The volunteers at Connecticut Advocates for Parkins...read more
Parkinson’s can be an isolating disease, which is why it’s essential to spend time with a family member living with it. The volunteers at Connecticut Advocates for Parkinson’s i...read more
Parkinson’s disease is one of the most complex neurodegenerative conditions. With no existing cure, research is targeting a number of unique possibilities for a solution. One of the ...read more
Parkinson’s disease is one of the most studied medical conditions. It’s both complex and debilitating, which is why ongoing research for a cure is a priority in the medical community...read more
Karen is a volunteer for the adaptive ski program STRIDE at Ski Sundown in New Hartford. She says, “doing something where I’m focused on helping someone else is very reward...read more
On Thursday, January 25th, CAP’s Glastonbury Support group hosted Dr. David Matuskey, M.D and Mark F. Dias from Yale University School of Medicine to speak about their novel, cutting...read more
Parkinson’s disease is one of the most puzzling and complex neurodegenerative conditions. Different avenues of research focus on a variety of insights while searching for a cure...read more
Parkinson’s disease is one of the most debilitating and complex medical conditions. However, despite its prevalence, many people find it difficult to understand, which is why volunte...read more
Parkinson’s disease is a debilitating condition, and alongside the challenges of treatment and recovery, patients often receive extensive bills. This creates a major burden for ...read more
Although Parkinson’s disease has no cure, there are many lifestyle factors you can change to help manage it. Diet and nutrition play a crucial role in all aspects of bodily function,...read more
Joe, who is 59-years old, was diagnosed with Parkinson’s Disease 6 years ago.  Joe is the CAP State Delegation Leader. He is married and the father of two sons, and lives in Be...read more
As the New Year begins, I find the desire to set new goals and try to change my mind set on certain issues.  I always try to start with a positive attitude. In this regard, I wo...read more
Parkinson’s disease ranks among the most common late-life neurodegenerative diseases, and also affects younger people, as well (About 10%-20% of those diagnosed with Parkinson’s...read more
Parkinson’s is one of the leading neurodegenerative diseases. With no cure, treatment options and management vary from patient to patient. Researchers continue to look for ...read more
Parkinson’s disease is an extremely complex condition. Because there is no cure, there are constant clinical trials being conducted. For patients that are unable to manage their...read more
If your loved one is suffering from a serious medical condition like Parkinson’s disease, it can be emotionally difficult to accept it and reshape aspects of your...read more
In 2006, Ray Figlewski was diagnosed with Parkinson’s disease.  The dancing that he had loved so much up to that point had begun to elude him – “losing my coordination” he says ...read more
CAP’s Gala on Saturday, November 18th at the Aqua Turf Club in Plantsville, CT was a rousing success. Four hundred and thirty people enjoyed a fun-filled evening complete with a live...read more
Nothing replaces an effective health care team, especially when managing conditions like Parkinson’s disease. Patients require an extensive and varied amount of care, but understandi...read more
Parkinson’s disease is one of the most heavily researched health conditions. It has no cure and leaves patients immobile and unable to care for themselves as it progresses....read more
Living with Parkinson’s disease affects every aspect of your life and drastically limits your abilities. While there is no cure for this movement disorder, there are treatment option...read more
Parkinson’s disease is one of the most prevalent neurological disorders, and watching a loved one endure its progression is heartbreaking. Early treatment is imperative, which i...read more
In September, I attended (and was part of Planning Committee) a four day program in Grand Rapids, Michigan.   I serve as an advisor to the Cure Parkinson’s Trust UK, who in...read more
CAP’s inaugural newsletter in October was very well received.  Thank you all for your positive feedback. We are doing the very best we can to provide local support to those figh...read more
Parkinson’s disease is a debilitating and emotionally painful condition that affects many people. This progressive nervous system disorder is a constant topic of medical researc...read more
Parkinson’s disease is one of the most common neurodegenerative disorders and affects millions of people around the world. It develops gradually, often without warning signs, and has...read more
Watching a loved one suffer from the progression of Parkinson’s disease is a challenging experience, and with no clear cure, the challenge gets greater with time. Risk factors and p...read more
Advocacy Efforts September 8 – 12, 2017  I was in Cleveland on September 8th and attended the “Shaking with Laughter” Program presented by Karen & Mark Jaffe, to benefit t...read more
In January, I was honored and humbled to be voted Chairman of the Board for Connecticut Advocates for Parkinson’s (CAP). I am replacing Steven DeWitte, CAP’s founder. Steve is a visi...read more