Rutherford, New Jersey

The Maya Rose Project

The Maya Rose Project

(732) 672-4660
The Maya Rose Project, Disability Resources, Health and Beauty, Forest Hills, New York

Ever since she was eight months old, Maya Rose has been struggling with the restraints of a chronic disease. Today, Maya is a cute and much-loved eight-year-old girl, but, sadly, her life is anything but average for a child in New York City. Unlike most other girls her age, Maya struggles with tasks like moving on her own and communicating, and her child development trajectory is much different from her peers. In fact, Maya has never walked or spoken. But unlike other young children dealing with a chronic disease, there isn’t a name yet for what Maya struggles with. The Maya Rose Project aims to change that.

As a single parent and Maya’s primary caregiver, her father, Alex Dwek, has been by Maya’s side her entire life. Together, the two have visited every type of specialist imaginable in the New York, New Jersey, and Philadelphia area. But while New York City has some of the best doctors in the world, no one has been able to discover which chronic disease Maya suffers from.

Since child development is already a precarious balancing act, a child with an unknown illness has insurmountable obstacles on their path to a “normal” life. The Maya Rose Project aims to help Alex and Maya find out which unknown illness plagues the young girl, but their research and quest could help uncover answers that every family struggling with an undiagnosed chronic disease can benefit from.

To learn more about the Maya Rose Project and how you can help Maya pursue a diagnosis and eventual cure for her unknown illness, visit the project's website. You can contact Alex and Maya directly at (732) 672-4660 to get involved with finding a cure for Maya’s mysterious chronic disease. 

Announcements & Events from The Maya Rose Project
4 Ways You Can Help Friends Coping With a Child's Chronic Illness, Rutherford, New Jersey
Having a friend with a sick child can often be confusing and overwhelming. Of course, you want to help, but you may not know what to do, especially if their little one is suffering more
3 Ways to Advocate for Your Special Needs Child , Rutherford, New Jersey
Taking care of a child with special needs is challenging, but making sure they’re treated well by their teachers and caregivers can be even tougher. Alex Dwek, father of Maya Rose — more
How Maya-Rose Has Grown as a Child Since her Diagnosis , Rutherford, New Jersey
Maya-Rose was just eight months old when the first signs of disability appeared. Although her diagnosis is still a mystery and her path hasn’t taken a normal trajectory, more
Life With a Special Needs Child: How to Make Your Day-to-Day Easier, Rutherford, New Jersey
Raising a child with special needs is not always easy. No one knows that better than New York City’s Alex Dwek. His daughter, Maya Rose, is a beautiful eight-year-old, but she more
How to Detect Signs of Disabilities in Infants, Rutherford, New Jersey
Having a child with a disability is challenging. Alex Dwek is all too aware of this. His daughter, Maya Rose, has an undiagnosed chronic illness that has affected her development. more
When his child was eight months old, one father’s nightmare became a reality. There was something seriously wrong with his infant daughter—she couldn’t stand up and her legs more
If you have a child with special needs, you are not alone. Alex Dwek knows firsthand just how lonely and overwhelmed you may feel. His eight-year-old daughter, Maya, has a more
Having a child with a disability can be a daily struggle, especially as your little one grows and begins to interact with other children. Alex Dwek knows this struggle all too more
My beloved daughter Maya is an only child, however, many kids with disabilities have siblings who witness their brothers or sisters go through the pain and struggle of a chronic more
Life with kids with disabilities can be challenging and emotional. Alex Dwek of The Maya Rose Project knows this all too well—his daughter, Maya Rose, struggles with a more
Learning that your child has a disability can be devastating. Alex Dwek understands this only too well, as his daughter, Maya Rose, suffers from a rare ailment that leaves her more
Parenting is a demanding job that presents challenges on a daily basis. But the stress of caring for a child with chronic illness can be even more difficult to manage. Alex Dwek, more
Recognizing possible developmental disabilities early is one of the best ways to get a proper diagnosis and treatment plan in place. Alex Dwek of The Maya Rose Project in more
In her eight years, Maya Rose has visited doctors and medical professionals all over New York, New Jersey, and Philadelphia in pursuit of a diagnosis and treatment for an more
Eight years ago, Maya Rose was born a smiling, healthy baby. It wasn’t until she turned eight months old that her parents considered something might be wrong. Unlike most babies her more
On February 14, 2014, Alex Dwek and his daughter, Maya Rose, were featured on Help Me Howard, a popular segment on CW's Pix 11 newscasts. Eight-year-old Maya Rose has an unknown more